The battle against brain cancer has been long and arduous. Over the years, various treatment options have been explored, but a breakthrough in medical technology has paved the way for a promising alternative – Convection Enhanced Delivery (CED). In this blog post, we...
Patient Resources
The Importance of Addressing Rare and Orphan Diseases
In the vast landscape of healthcare, rare and orphan diseases often remain unseen and overlooked. Yet, these diseases affect millions of individuals worldwide, highlighting the pressing need to raise awareness and address them effectively. In this article, we will...
Medulloblastoma: Understanding and Navigating through Treatment as a Patient or Caregiver
Dealing with a diagnosis of medulloblastoma can be overwhelming for both patients and their caregivers. It is important to equip yourselves with knowledge to better understand this brain tumor and to be prepared for the journey ahead. This blog article aims to provide...
Understanding Diffuse Midline Glioma: A Guide for Patients and Caregivers
Receiving a diagnosis of diffuse midline glioma can be a challenging and overwhelming experience for both patients and their carers. This rare type of brain tumor significantly affects the quality of life for those affected. This blog aims to provide understanding of...
Understanding Leptomeningeal Disease: A Guide for Patients and Caregivers
Leptomeningeal disease is a rare but serious complication of cancer that affects the delicate membranes surrounding the brain and spinal cord. It can be a challenging diagnosis to comprehend, both for patients and their caregivers. In this blog article, we aim to...
What is Glioblastoma?
Glioblastoma (or Glioblastoma multiforme), often abbreviated as GBM, stands as one of the most aggressive and challenging brain tumors known to medical science. With its rapid progression and limited treatment options, it poses significant implications for affected...
Uniting for a Cause: Fundraising Opportunities during Childhood Cancer Awareness Month
Childhood Cancer Awareness Month is a powerful time to come together and raise crucial funds for pediatric cancer research, support programs, and initiatives. If you're passionate about making a difference and eager to contribute to this important cause, we've...
Brain Cancer Support Groups: A Comprehensive Resource Guide
Being diagnosed with brain cancer is a life-altering event that not only affects individuals but also their loved ones. While medical treatments play a crucial role, emotional support is equally vital in navigating the challenges that arise during this journey....
Understanding Clinical Trials: Phases and Qualification Process
Clinical trials play a vital role in advancing medical research and discovering innovative treatments for various health conditions. As a crucial part of the research process, clinical trials provide opportunities for individuals to contribute to the development of...